Comments on: What does a Cure for Spinal Muscular Atrophy Mean? http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/ Mon, 16 Jan 2012 21:21:56 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Dominick http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-2015 Dominick Sat, 03 Dec 2011 09:48:04 +0000 http://www.dominickevans.com/?p=409#comment-2015 Hi Christopher - You can teach others around you that those with SMA are like everyone else. Educating others about SMA is a great start. Also, if you want to volunteer, get in touch with organizations like Families of SMA to see what you can do to help! Good luck and thanks for the comment! Hi Christopher – You can teach others around you that those with SMA are like everyone else. Educating others about SMA is a great start. Also, if you want to volunteer, get in touch with organizations like Families of SMA to see what you can do to help!

Good luck and thanks for the comment!

]]> By: christopher Romero http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-2011 christopher Romero Mon, 28 Nov 2011 17:31:07 +0000 http://www.dominickevans.com/?p=409#comment-2011 i do not have sma but i want to know is there is something that can help it i fear my little cousin has it can i get some advice please i do not have sma but i want to know is there is something that can help it i fear my little cousin has it can i get some advice please

]]> By: shaun http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-2006 shaun Sun, 20 Nov 2011 13:39:34 +0000 http://www.dominickevans.com/?p=409#comment-2006 Hi My son has sma III he was diagnosed at 3, he is 6 now. I fear him not waking up not walking everyday, he already miss out on so much of his childhood, but he stay uplifted and positive. I hope there will be a cute in the near future to help all of you. That would be a tru blessing.... Hi
My son has sma III he was diagnosed at 3, he is 6 now. I fear him not waking up not walking everyday, he already miss out on so much of his childhood, but he stay uplifted and positive. I hope there will be a cute in the near future to help all of you. That would be a tru blessing….

]]> By: Dominick http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1976 Dominick Fri, 14 Oct 2011 16:01:52 +0000 http://www.dominickevans.com/?p=409#comment-1976 None to help the actual disease, but Spinal Fusion surgery can help scoliosis caused by SMA, and things like that. None to help the actual disease, but Spinal Fusion surgery can help scoliosis caused by SMA, and things like that.

]]> By: Destiny http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1975 Destiny Thu, 13 Oct 2011 01:54:36 +0000 http://www.dominickevans.com/?p=409#comment-1975 Hi I was diagnosed with SMA when I was just a few months old and I am wondering of there is a surgery to help SMA? Hi I was diagnosed with SMA when I was just a few months old and I am wondering of there is a surgery to help SMA?

]]> By: Dominick http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1972 Dominick Sat, 24 Sep 2011 08:35:21 +0000 http://www.dominickevans.com/?p=409#comment-1972 Thanks so much Tom!! Go Tigers! I love to hear all of the great things those with SMA are doing. That's the kind of message we need to get out to society to make them see us as people first and not merit us by our chairs! Thanks so much Tom!! Go Tigers! I love to hear all of the great things those with SMA are doing. That’s the kind of message we need to get out to society to make them see us as people first and not merit us by our chairs!

]]> By: Tom http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1969 Tom Mon, 19 Sep 2011 18:34:26 +0000 http://www.dominickevans.com/?p=409#comment-1969 Dominick You can email anytime you need to. Tom Dominick

You can email anytime you need to.

Tom

]]> By: Tom http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1968 Tom Mon, 19 Sep 2011 18:31:28 +0000 http://www.dominickevans.com/?p=409#comment-1968 Dominick Howdy! I see that you are a Detroit Tiger fan. They are having a great year. I'm a Texas Ranger fan. Maybe one of them will make it to the World Series this year. If a cure comes, then you can deal with it at that time. In the mean time learn from the past, enjoy today, and plan for tomorrow. Never.... give up hope. Keep your dreams alive. I have 3 wonderful kids that all have SMA. My oldest daughter turns 30 today. My two sons are 28 and 24. They are all very successful. None of them ever walked.My youngest started driving his wheelchair around at the age of 18 months. We do things together all the time. If you are ever down in Texas, please look us up. Tom Dominick

Howdy! I see that you are a Detroit Tiger fan.
They are having a great year. I’m a Texas Ranger fan.
Maybe one of them will make it to the World Series this year.
If a cure comes, then you can deal with it at that time.
In the mean time learn from the past, enjoy today, and plan for tomorrow.
Never…. give up hope. Keep your dreams alive.
I have 3 wonderful kids that all have SMA. My oldest daughter turns 30 today. My two sons are 28 and 24.
They are all very successful. None of them ever walked.My youngest started driving his wheelchair around at the age of 18 months.
We do things together all the time.
If you are ever down in Texas, please look us up.

Tom

]]> By: Mark http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1527 Mark Fri, 02 Oct 2009 02:18:28 +0000 http://www.dominickevans.com/?p=409#comment-1527 Hi. I've got SMA too. My understanding is that most of SMA specific research is more geared towards treating children before they lose to many lower motor neurons, or preventing further loss in adults. But I think that there's a lot of other more general biology and biotechnology research in the pipelines that will help adults with SMA in one way or another. If you're interested in helping or learning about research the international SMA patient register might be of interest (https://smaregistry.iu.edu/) Hi. I’ve got SMA too. My understanding is that most of SMA specific research is more geared towards treating children before they lose to many lower motor neurons, or preventing further loss in adults. But I think that there’s a lot of other more general biology and biotechnology research in the pipelines that will help adults with SMA in one way or another. If you’re interested in helping or learning about research the international SMA patient register might be of interest (https://smaregistry.iu.edu/)

]]> By: Mandi http://www.dominickevans.com/2009/09/what-does-a-cure-for-spinal-muscular-atrophy-mean/comment-page-1/#comment-1524 Mandi Mon, 28 Sep 2009 19:48:22 +0000 http://www.dominickevans.com/?p=409#comment-1524 I'm also 28 and wonder the same thing. I would say that you should dream for the day when there is a cure but not long for it. OR anoher way to say live in the present and hope for the future. I just saw an article here http://www.stemcellschina.com/index.php/en/sma---ms.-loredana I have to admit my mind was racing and my eyes almost cried when I read the improvements. I would love to be able to walk again (stopped walking around age 11). I would love to be able to chase my daughter around and dance with my husband. Wonderful dreams and they in a way keep me going. I’m also 28 and wonder the same thing. I would say that you should dream for the day when there is a cure but not long for it. OR anoher way to say live in the present and hope for the future. I just saw an article here http://www.stemcellschina.com/index.php/en/sma—ms.-loredana
I have to admit my mind was racing and my eyes almost cried when I read the improvements. I would love to be able to walk again (stopped walking around age 11). I would love to be able to chase my daughter around and dance with my husband. Wonderful dreams and they in a way keep me going.

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